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Support groups

This page has links to websites with information about support groups for parents affected by birth defects. We hope you find these sites helpful. Please remember we do not control or endorse the information given on these websites, nor do these websites endorse the information given here.

Genetic Alliance
Suite 404, 4301 Connecticut Avenue NW
Washington, DC 20008-2369
Phone: 202-966-5557

National Down Syndrome Congress
Suite 108, 30 Mansell Court
Roswell, GA 30076
Toll free: 800-232-6372 (NDSC)
Phone: 770-604-9500

National Down Syndrome Society
666 Broadway, 8th Floor
New York, NY 10012
Phone: 800-221-4602 or 212-460-9330

National Organization for Rare Disorders (NORD)
55 Kenosia Ave.
Danbury, CT 06810
Phone: 203-744-0100
Toll free: 800-999-6673

SOFT (Support Organization for Trisomy 18, 13, and Related Disorders)
2982 South Union St.
Rochester, NY 14624
Phone: 585-594-4621
Toll free: 800-716-7638 (SOFT)

The Compassionate Friends
P.O. Box 3696
Oak Brook, IL 60522
Phone: 630-990-0010
Toll free: 877-969-0010

Online Medical Reviewer: Haldeman-Englert, Chad, MD
Online Medical Reviewer: Sather, Rita, RN
Date Last Reviewed: 3/14/2016
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